Charity Registration No 1136809
My name is Rhea Kara. I am 9 years old and go to Eaton House The Manor Girls' School. I heard about the Reverse Rett charity from my school. This is a charity run by mums and dads of children who suffer from Rett Syndrome. Rett is an illness which does not allow you to use your body anymore. You suddenly can't use your hands or legs and are trapped in your own body. It mostly affects young girls. I cannot imagine how I would feel if this happened to me - I would not be able to paint or do arts and crafts anymore!
There is not a cure for Rett as yet but there is hope. They have reversed Rett syndrome in mice and are now trying to get this treatment to work on young girls who are affected by this, such as my friends Hannah, Beth and Amber.
'Like many young people, Rhea was incredibly moved when she saw a friend suffering from a debilitating illness. But what makes Rhea stand out is that she was motivated to use her creativity and hard work to try and make a difference. To have raised so much money to support vital research for her friend Hannah and others with Rett syndrome is fantastic. And to have done so before she's even turned ten, is truly astounding. I wish Rhea all the best in her new fundraising challenge. She is an inspiration to us all and I am so pleased to make her a Point of Light."
My passion is art. In 2014 I decided to paint and sell 100 canvasses in 100 days to raise money for Reverse Rett charity. I ended up painting 171 canvasses and sold 166 of these raising almost £4,000. In 2015 I did the same challenge again and I created 140 pieces of art in 100 days - I sold them all at our local village fete raising over £5,000.
I was very honoured to have been shortlisted for the National Fundraising award 2015 and to receive the Points of Light Award from the Prime Minister. This has helped raise awareness of Rett syndrome and will help raise even more money for the charity.
I will not stop fundraising till we find a cure for Rett Syndrome.
Please join me in my fundraising effort by clicking on the DONATE button. Without the funds for research, the scientists will not be able to find a cure for Rett syndrome!
Please see this video of my friend Hannah
who suffers from Rett syndrome
Mrs Sarah Segrave,
The Manor Girls' School
"I am enormously proud of Rhea. She has given up a great deal of her free time to create some wonderful pictures, and raised a significant amount of money in the process. To do this once was commendable. To realise that more research, and hence more funds were still needed, and to repeat the project this year, shows true grit and determination to improve the lives of others."
MP for Streatham
"Acting selflessly, using her abilities to help others, setting herself a challenge and surpassing her aim by raising such an impressive amount of money for vital research into Rett Syndrome: Rhea is an example and inspiration to all of us.